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The Nazarene Hope Centre in Bochabela, Bloemfontein, is a home for autistic children.
Founded by Buyi Choene at her private residence in 2013, the centre is a beacon of hope for autistic children in the society, due to its ability to provide much-needed care.
Depending mainly on state grants, currently 23 children are being looked after by a dedicated team of women caregivers, which includes Choene. Others are Sophie Mlangeni, Tumelo Sebege, Nomaswazi Simelane and Baile Moshoeu. Thato Makate is part of the management, together with these women.
According to medical definition, autism, also called Autism Spectrum Disorder (ASD), is a complicated, lifelong condition that includes problems with communication and behaviour. It is a spectrum disorder, which means it affects people in different ways and in varying degrees. It is said it usually appears by age two or three.
Tying in with Autism Awareness Month during April, BloemExpressinterviewed Choene about being at the coalface, caring for autistic children. She says she founded the centre after discovering her child has autism.
“It took me four years to discover my child is autistic. When I came to Bloemfontein, I could not find a day care I could afford; that’s when I decided to open one that will accommodate everyone,” says Choene.
She explains that a broad range of conditions can manifest in people with autism.
“This can be characterised by challenges with social interactions, repetitive behavioural challenges, communication difficulty, access to services, as well as executive functioning difficulties.”
Choene believes a lack of understanding when it comes to autism remains a barrier in addition to limited resources.
“There is still a lot of misunderstanding and misinformation about autism in many societies. This can lead to stigma, discrimination and marginalisation. Several communities lack the necessary resources, such as funding for research, education, and support services for individuals with autism and their families. Without these resources, it is challenging to raise awareness and provide adequate support for persons with autism.”
Choene has encouraged parents to take the initiative to educate themselves about autism and to seek help.
“It is advisable for parents to focus on the strengths of children and communication strategies, as well as to embrace sensory differences and practice patience and flexibility.”
Choene has stressed the importance of adherence to medical treatment.
“Medication should be carefully monitored and prescribed by a qualified healthcare provider. The most effective treatment for a child with autism involves a comprehensive and multidisciplinary approach that addresses their unique strengths, needs and goals.
“Collaboration among parents, caregivers, educators, therapists, and healthcare providers is essential to design and implement an effective treatment plan,” believes Choene.
