A rare chromosomal disorder isn’t stopping these two girls from living a full life

04 Mar

Siphokazi Zama

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Liesl Harms (left) was 16 months old when she was diagnosed with Phelan-McDermid syndrome. Zephira Chetty, who also has the rare disorder, was given five years to live. (PHOTO: Supplied)

She's unable to crawl, walk, talk or chew and life has many challenges – yet the little girl’s family regard her as a blessing and even a miracle.

When Zephira Chetty was diagnosed with a rare genetic disorder her parents were told she wouldn’t live past the age of five. Now she’s six and her family are doing everything to ensure she’s as comfortable and happy as possible.

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